My brain is plastic, its fantastic

Photo montage: iStock/Tori Deux

Photo montage: iStock/Tori Deux

My goal is to get better, I want to return to the same level of ability that I enjoyed prior to my stroke. Ok ok , I needed to establish this, even if it may seem to you that I am stating the obvious!

I’m finding life after stroke takes a lot of energy. Recovery takes a lot of energy. Feeling exhausted saps motivation big time.

After discharge from the inpatient rehabilitation unit my therapy was, in the main, self directed. I had to wait 10 weeks for outpatient rehab therapy to kick in, and in contrast to the daily sessions that were part of my inpatient treatment I now only receive 1 – 30 minute physiotherapy appointment and 1 -45 minutes of occupational therapy each week.

So, I am responsible to pick up the slack…. and do the work. I am the one who can control the success or failure of my treatment and treatment choices, and I am the one who stands to gain. Behaviour changes the brain, and as a survivor my belief is that my behaviour will play a part in rewiring my brain.

I really believe in “do what you love to get better”. Prior to my stroke I was in pretty good shape,so the first thing I added to my own regime (once I was able to) was walking on a treadmill.Very slowly at first, and then gradually building up the speed, incline and distance.

There is a protein called brain-derived neurotrophic factor, ( BDNF). BDNF has been called “miracle grow for the brain”.BDNF can also protect neurons and lead to neuronal growth. BDNF is produced naturally right after birth – because the brain has to massively rewire after birth. It is also produced after brain-injury, and this includes stroke. The way to pump the brain full of BDNF is with exercise. Both cardiovascular and resistance training will bathe the brain in BDNF. So along with the other benefits that exercise brings, you are helping your brain to rewire. Walking triggers neuroplastic change in the brain.

The limitations of treatment freely available to me, led me to seek additional treatment options.

Like most people I respond to encouragement and positivity , and respond well to practitioners with this approach and energy.

I also started seeing Stephanie, a private physiotherapist who practises using Clinical Pilates. Clinical Pilates is a form of physical exercise that focuses on posture, core stability, balance, control, strength, flexibility, and breathing. This was a good addition to my rehab, given left sided weakness and alignment issues following my stroke.

Part of the body’s ability to recover following damage to the brain can be explained by the damaged area of the brain getting better, but mostly it is the result of neuroplasticity – forming new neural connections. But there are a few more steps to mastery and brain rewiring than just deliberate practice: motivation, positive emotions, and visualization all play a part.

In my research to better understand neuroplasticity and the brain’s ability to modify its connections or re-wire itself, I discovered Norman Doidge’s fascinating book The Brain’s Way of Healing and after reading the chapter on Dr. Moshe Feldenkrais, I read Anat Baniels'(a student and colleague Feldenkrais)- Move into Life. Feldenkrais developed practical ways to capitalize on the brains way to change itself through movement, and Anat’s Baniels’ Neuromovement Method has evolved from his teachings.

The Anat Baniel NeuroMovement® Whole Body Fitness focuses on providing the brain with new information, and the brain uses this information to change and improve what we do. Unlike traditional approaches that utilize repetitive task to regain what is lost with stroke, the Anat Baniel Method approaches healing brain problems through the awareness of movement. No part of the body can be moved without involvement of other parts being involved. Awareness of movement is the key to improving movement, and the sensory system is intimately related to movement not separate from it.

I really felt really open to this holistic approach based on self-awareness, and I wanted to try it out so I contacted Anat Baniel, and this week I have started to integrate Neuromovement into my rehabilitation.

* I want to caution anyone reading my account, that I am no medical expert, I am writing this as a personal account of how stroke has affected me, and it’s my journey of recovery.

Stroke of luck

12525285_10154011402650871_3129096833575224089_o (1)
This post replaces the original, published on 2016/05/24

Hi, this is Kathy James founder of ShrinkRap. In 2016 I decided to share my personal experience of stroke, and in particular with The Anat Baniel Method

On December 26th,2015 full of Christmas plumptiousness I arose full of energy and decided to head to my local rec. center to work off some of the excesses of the previous day.

I felt rather sanctimonious as I skipped to my car, thinking how wonderful I was to be making this effort while the surrounding neighborhood seemed quiet, and basked in holiday sleepiness.

There was nothing unusual as drove off that alerted me to what lay ahead.

I was struck by how cold I felt as I started my workout, so much so that I kept my gloves and hoody on! But after 25 minutes or so I was sufficiently warmed up to remove them as I moved into my mat work having completed my initial cardio warm-up.

I suddenly became aware of a slight tingle in my head, and then with some consternation, I began to experience left-sided numbness in my tongue and face. With slight uneasiness, the thought crossed my mind that this was not good, and possibly signs of a stroke. I mentioned this to the fellow working out next to me, he felt reassured knowing me as a regular, that I was just working out a bit too hard, and advised me to take a seat.

Then the numbness started to radiate down my entire left side, I lost my balance and decided to lay down. That is when my fellow gym mates realized that all was not well, and the lifeguards from the pool were summoned and a 911 call was made. Within 30 minutes I was having an MRI which would show that I had suffered a brain bleed in my thalamus. I had indeed suffered a stroke. By this time my husband and children were at my side.

I maintained an eerie sense of calm, oh well I’ve had a stroke I’ll see the neurosurgeon and then go home. It was only when I needed to use the bathroom that I realized I couldn’t move. I was admitted first to the hospital then after 2 weeks there, I was moved to an intensive stroke rehab unit where I would spend the next 8 weeks.

During this time I followed the regime of treatment that was prescribed, I had no energy to research my stroke. I just slept (a lot), and followed the treatment protocols that the doctors there prescribed for me. By the time I was discharged from the hospital I had regained some independence, I was able to walk with a cane and dress myself. But I still lacked sensation in my left hand and had issues with movement in my left arm and shoulder. The left side of my face responds with an unpleasant sensation of tingling in response to hot and cold when eating ( and spicy food), and there are times my head feels as if someone has vacuumed the left side of my brain!

Following discharge, the questions started to come, as did my online research. I wanted answers, and couldn’t find them. Answers that my treating professionals didn’t seem to have, or at least the answers I needed to hear.

I think I was looking for someone who had gone through a similar experience, I wanted to be able to share timelines of recovery, what I could expect, and when would it happen. I still haven’t found this and it is why I decided to share my own experience.

I want to caution anyone reading my account, that I am no medical expert, I am writing this as a personal account of how stroke has affected me, and my journey of recovery.

April 2nd is Autism Day

April 2nd is Autism Day and all of April is Autism Month. The recent increase of diagnosis of Autism poses a huge challenge to families and a great burden to society. Thousands of highly qualified people, from activist parents, to researchers, to therapists and innovators are hard at work looking for ways to help the children (and now also adults with ASD), and try to find the causes and effective solutions. While ABM NeuroMovement® is not the full solution, it  has  been able to help, in significant ways, many children with this challenge. Anat Baniel has written a first out of a series of articles/blogs providing parents, therapists and others with new ways of thinking about Autism and offering some tools to implement in daily life.

Read Anat Baniels  blog here

autism-ribbon

Signs of a Stroke

I am posting this video because its quite personal. On December 26. 2015 I suffered a stroke. I was at the gym. I knew instinctively what was happening to me. I was immediately assisted by the gym attendant and lifeguard from the pool and they implemented F.A.S.T.
gave me oxygen, and called 911. I was in a good place, if there is such a thing, to be having a stroke.
I was fortunate and received quick treatment.

As I deal with the aftermath of my stroke and research the web for resources I am coming to realize how important it is to create awareness of the symptoms of  stroke and knowledge of this type of event.

http://www.webmd.com/stroke/video/signs-of-a-stroke